My baby is here



charity event 2018



It is so wonderful to report that I will mother. It's a girl, the estimated date of birth is the 8.6. and I am pleased with my partner so much on the great fortune. Even I never thought that I can be so happy after such a terrible fate. This is the proof, that one must never give up.


A short video of my baby found here > -Video-


Our meeting 2017

Thank you to our members who are committed, even with such a serious subject, it had been a very happy and successful meeting. It gave me made it very fun about our past, Present and talk about the future for excellent and to Discuss. I hope that this year we 2018 grow at our next meeting and get great solutions and proposals again.

There was coffee,Tea and a nice breakfast . Thank TB – Sticks Sport Gastro for donating tasting and the use of the premises for our meeting.

What we do with your donations?

included in the package ; Alhydran 250ml , Whey bath 500g , kelofobrase creams 25 ml, Flyer

What we do with your donations?

Video ( Please use the link )



The packages are individually adapted to each affected, each package is individual asked everyone to the need together.


We must help again

press conference

Together we can help

finally air

Mr. Greiner has made for me a nasal tube so I can finally breathe again.

Why must compression make no fun ?

I have to belong tired of the standard and even less I would like to squeeze me every day in my compression underwear that I find scary ugly. Of course, I said that in my dear supporters John + Bamberg and they had a really great idea, they let me be creative and we told compose even a few colors. And so the idea came to us once to be different. I love my compression and I see a little like Spider Women.



” The new eye”

Now it's just 1 month ago , that eye was completely white . Pain I have no more but the wound on his butt hurts a lot. I no longer have to drop every hour the load, now and then I have to take Cornaregel because my glands to lubricate the eye are etched. My second prosthesis was made and it is almost 3 times as large as the first. It is a transparent glass bowl. The bear is very pleasant, I do not even feel the shell. I initially had already told that I would have great fear itself so as not to get along , but this has never occurred to happiness. On the contrary, I feel very comfortable as my eye can not lame and it does not look like I was squinting. I have not had the dish every day take out but Mr. Greiner ( my prosthetist) said that this in the future but is beneficial. I should clean it every morning and the eye care.



I now have the Ultimate evil eye on it 🙂


My butt wound



Products that I use at the time



Eye surgery No.. 2

It was shortly scheduled a second surgery today. My eyes only 70 % is supplied with vessels they want to sew a precaution even oral mucosa over the eye. This is taken from the lower lip. a 13 Pm it starts and takes about 1- 1,5 std . I'm curious about the result in a few months.

The operation is over

The operation is over, I woke up with no pain. My unbearable headaches by shrinking the eye were gone immediately. My face half plus my head were Stunned, that 5 Hours after surgery. Today is 01.06.17 a day after the operation and it just feels like I have a grain of sand in the eye. I have made myself before myself so crazy, because I was afraid of the pain, and now I have to laugh a little because I have no. With so many things I have spoken to take away the fear and now it's all been different with me. My eye itches a little, and it will 3 dripped times daily with antibiotics. Today the visit, Dr . Merit and Prof. Besch me explain the 70% the vessels are well addressed and if everything remains stable it looks good. Since I've got no common seal, but my prop is bold course also the fear that could shrink it and the operation must be made again. Fat was taken out of my butt and seal it formed. I can only all other stakeholders advise perform this operation, if they suffer from a Schimpf end eye and anyway blind are. I do not have any pain, oh well I now see a little demolished from but I have to get back quality of life.

The eye surgery / Dermis Fett


It is built out of my butt a fat seal and sewn in my eye. Here, the doctors try my fat the eye-fed with vessels. If that is not enough to remove even the oral mucosa in the mouth and put me in the eye. My eye socket is completely etched and scarred making it difficult later to use a prosthetic. I asked what happens if my eye does not tolerate shell by the scar tissue ? Well then it remains empty . I think anything is better than 24 Hr to endure this pain. And now is a time where I just anything can wish bad my ex Daniel Flory.


The morning before op


Yesterday the preliminary took place , it was unbearable , they had considered the eye does not prof to surgery as well as the doctor. James Merit has in mind from the USA. Frau Prof Besch asked me what I did for expectations would have to doctors. Is it me, this is the pain or the appearance . I started out on mega crying because I had such a fear of being sent away . That can promise me anything, but they make the Op . I have extreme pain just as they of course the eye had to watch now and again my eye pressure is not right. Maybe even a good thing then calls me again to mind the surgery is absolutely necessary. I am currently very tired and exhausted, the excitement, Fear and pain make me totally exhausted . today the 31.5.2017 one 13 AM is the OP stated.


Wish me good luck